About Hypermobile Ehlers-Danlos syndrome

What is Hypermobile Ehlers-Danlos syndrome?

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare inherited connective tissue disorder that affects the body’s joints and skin. It is characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. People with hEDS may experience joint pain, chronic fatigue, and frequent dislocations. Other symptoms may include easy bruising, poor wound healing, and digestive problems.

What are the symptoms of Hypermobile Ehlers-Danlos syndrome?

The symptoms of Hypermobile Ehlers-Danlos syndrome (hEDS) can vary from person to person, but may include:

-Joint hypermobility and joint pain
-Chronic fatigue
-Gastrointestinal issues such as reflux, constipation, and bloating
-Dizziness and lightheadedness
-Soft, velvety skin
-Easy bruising
-Stretchy skin
-Chronic headaches
-Muscle Pain and cramps
-Chronic pain
-Dental problems
-Sleep disturbances
-Anxiety and depression

What are the causes of Hypermobile Ehlers-Danlos syndrome?

The exact cause of Hypermobile Ehlers-Danlos syndrome (hEDS) is unknown. It is believed to be caused by a genetic mutation that affects the production of collagen, a protein that provides structure and strength to the body's tissues. Other possible causes include environmental factors, such as exposure to certain toxins, and lifestyle factors, such as smoking or poor nutrition.

What are the treatments for Hypermobile Ehlers-Danlos syndrome?

1. Physical therapy: Physical therapy can help improve joint stability, reduce pain, and improve overall function.

2. Occupational therapy: Occupational therapy can help improve daily activities and help with adaptive strategies to reduce pain and improve function.

3. Medications: Non-steroidal anti-inflammatory drugs (NSAIDs) can help reduce pain and inflammation. Other medications, such as muscle relaxants, may also be prescribed.

4. Bracing: Bracing can help reduce joint instability and improve function.

5. Surgery: Surgery may be recommended in some cases to stabilize joints or correct deformities.

6. Lifestyle changes: Making lifestyle changes, such as avoiding activities that put too much strain on joints, can help reduce pain and improve function.

What are the risk factors for Hypermobile Ehlers-Danlos syndrome?

1. Family history of Hypermobile Ehlers-Danlos syndrome
2. Joint hypermobility
3. Chronic pain
4. Chronic fatigue
5. Gastrointestinal issues
6. Poor wound healing
7. Skin fragility
8. Dental problems
9. Cardiovascular issues
10. Autonomic dysfunction
11. Scoliosis
12. Osteopenia/osteoporosis
13. Dysautonomia
14. Mitral valve prolapse
15. Chronic headaches
16. Chronic musculoskeletal pain
17. Chronic joint dislocations
18. Chronic subluxations
19. Chronic soft tissue injuries
20. Chronic fatigue syndrome

Is there a cure/medications for Hypermobile Ehlers-Danlos syndrome?

There is no cure for Hypermobile Ehlers-Danlos syndrome, but there are medications and treatments that can help manage the symptoms. These include physical therapy, medications to reduce joint pain and inflammation, and lifestyle changes such as avoiding activities that put too much strain on the joints. Additionally, some people may benefit from taking supplements such as collagen or omega-3 fatty acids.